Abstract
Purpose
Modern cancer care is provided in highly specialized structures as certificated centres and comprehensive cancer center, as well as specialized practices. In contrast, the position of the general practitioner (GP) is less well characterised and there is a lack of information about his importance in the care for cancer patients. The aim of our survey was to assess the role of GPs in German cancer care from patients’ perspective.
Methods
In several steps we developed a standardized anonymous questionnaire in cooperation with the German Association of General Practitioners and the Federal Association of German Self-Help Groups. This questionnaire was used in a print and an online version and distributed by the self-help organizations to their members.
Results
Seven hundred and forty participants took part in the survey, 66.5% women and 30.1% men. 71% had visited the GP during cancer therapy and 34.5% discussed decisions concerning diagnostics and therapy with him. The most relevant reasons to visit the GP during cancer therapy were to get a blood test (63.3%), comorbidities (42.7%) and complaints and side effects (38.3%). For the latter, most often a detailed discussion ensued (57%), fooled by a prescription (37.7%). In 63.4% the GP offered support when patients had some questions or worries concerning their cancer. Yet, 17% of the patients reported that the GP did not try to help. 85.5% of the participants thought that it is important that their GP is informed about the therapy on a regular basis. For 77.0%, a simultaneous care provided by the GP is important or very important.
Conclusion
Our survey points to the importance of the GP during cancer therapy from the patient’s point of view. Patients want their GP to take an active part in the cancer therapy. Furthermore, early integration of the GP may also enhance early integration of palliative care and also help family members and caregivers. A strategy to integrate GPs is the establishment of shared care models, in which GPs are supported by specialists and get additional training in cancer care.
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Acknowledgements
We thank the Federal Association of Self-Help Groups “Haus der Krebs-Selbsthilfe—Bundesverband e.V” and all patients who took time with the questionnaire.
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There was no funding for this study.
Conflict of interest
S. Walter has worked as coordinator at the “Haus der Krebs-Selbsthilfe—Bundesverband e.V.”. J. Fessler is a leading member of the IHF. The other authors declare no concflict of interest.
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All procedures performed were in accordance with the ethical standards of the institutional research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards. Due to the anonymity, ethical approval according to the rules of the Ethical committee of the J.W. Goethe University was not required.
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Due to the anonymity no informed consent was obtained from the individual participant. Yet, by participating in the survey, the individuals agreed to the scientific evaluation of the answers.
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Lang, V., Walter, S., Fessler, J. et al. The role of the general practitioner in cancer care: a survey of the patients’ perspective. J Cancer Res Clin Oncol 143, 895–904 (2017). https://doi.org/10.1007/s00432-017-2343-4
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DOI: https://doi.org/10.1007/s00432-017-2343-4