Table 1. Participant characteristics
CharacteristicFrequency, n (%)
Total participants458
Age, years
 18–2547 (10.3)
 26–40148 (32.3)
 41–60202 (44.1)
 ≥6161 (13.3)
Sex
 Male183 (40.0)
 Female244 (53.3)
 Did not report as male or femalea 14 (3.0)
 No response17 (3.7%)
Qualifications achievedb
 Postgraduate degree74 (16.2)
 Bachelor’s degree163 (35.6)
 Diploma of higher education59 (12.9)
 Certificate of higher education49 (10.7)
 A-level or equivalent245 (53.5)
 General Certificate of Secondary Education (GCSE)341 (74.5)
 Basic skills87 (19.0)
 No formal qualifications39 (8.5)
 Other76 (16.6)
Employment statusb
 Employed without support142 (31.0)
 Employed with support6 (1.3)
 Self-employed36 (7.9)
 Volunteer58 (12.7)
 Unemployed194 (42.4)
 Retired25 (5.5)
 Other78 (17.0)
Autism diagnosis
 Formal diagnosis392 (85.6)
 Suspected or unsure or awaiting assessment66 (14.4)
 Mean age at diagnosis (SD; range)37.7 (15.6; 2.0–68.0)
SRS score by severity categoryc
 Normal9 (2.3)
 Mild38 (9.6)
 Moderate121 (30.6)
 Severe227 (57.5)
 No response63 (13.8%)
 Mean (SD)116 (26)
Intellectual disabilityd
 Formal diagnosis28 (6.1)
 Suspected33 (7.2)
Type of secondary school attendedb
 Mainstream school424 (92.6)
 Specialist schooling (at any time)54 (11.8)
Statement of special educational needs
 Yes60 (13.1)
 No362 (79.0)
 Don’t know32 (7.0)
 No response4 (0.9)
Additional help with learning received at mainstream schoolb
 No help349 (76.2)
 Classroom support35 (7.6)
 One-to-one instruction22 (4.8)
 Extra time for exams53 (11.6)
 Special equipment13 (2.8)
 Quiet room28 (6.1)
 Support person36 (7.9)
Support received currentlyb
 Home135 (29.5)
 Employment45 (9.8)
 Health117 (25.5)
 Finance120 (26.2)
 Social67 (14.6)
 Lifelong learning56 (12.2)
 Community86 (18.8)
 Organisation70 (15.3)
 Do not receive support205 (44.8)
Support needed currentlyb
 Home120 (26.2)
 Employment190 (41.5)
 Health161 (35.2)
 Finance202 (44.1)
 Social247 (53.9)
 Lifelong learning222 (48.5)
 Community136 (29.7)
 Organisation140 (30.6)
 Do not want to receive support61 (13.3)
Completion of survey
 On own371 (81.0)
 With help from somebody else77 (16.8)
 No response10 (2.2)
  • aNot included in analyses of sex comparison; data included in all other analyses. bResponders could tick more than one option, so percentages add up to more than 100%. cThe Social Responsiveness Scale (SRS) scores are reported under the categories given by the SRS authors; however, the authors are aware that some autistic people may dislike this terminology and view it as pathologising. dResponders were asked to tick the relevant box if they had been diagnosed with or suspected they had an intellectual disability.