Table 1. Inclusion and exclusion criteria for people with dementia, family caregivers, and healthcare professionals
Person with dementia
Inclusion criteria

  • Diagnosis of dementia as assumed by information provided by the agencies involved (that is, Join Dementia Research records), or by verbal confirmation from the person themselves or their caregiver.

  • Lives in the community (lives in their own home alone, with family members, in an assisted living facility, retirement community, or residential home).

  • Has a named caregiver willing to participate in a dyadic interview.

  • Able to vocalise a willingness to take part in an interview.

  • Verbally proficient in English.

Exclusion criteria

  • Currently or recently experiencing any major psychological, physical distress, or emotive or stressful life events which taking part in an interview may exacerbate (as asked to the caregiver).

Family caregivers
Inclusion criteria

  • Self-identifies as the current or previous primary caregiver for an individual diagnosed with dementia. This may include a family member, relative, neighbour, or friend who is involved in care or spends the most time with the person with dementia.35

  • Willing to take part in an interview (alone or with the person with dementia).

  • Verbally proficient in English.

Exclusion criteria

  • Aged <16 years.

Healthcare professionals
Inclusion criteria

  • Self-reports as working with people with dementia in a professional capacity.

  • Has experience providing care for people with dementia in a professional capacity.

  • Willing to take part in an interview.

  • Verbally proficient in English.

Exclusion criteria

  • Not directly involved in the provision of care for people with dementia.