| Pseudonym | Relationship | Age, years | Previous occupation | Diagnosis (date)c,d | Cognitive test score (test, date)c,d | Current pain conditionsc,d | Pain nowe | Pain in previous 4 weekse |
|---|---|---|---|---|---|---|---|---|
| Patriciaa | Wife | 82 | OT | AD (2014) | 18/30 (MMSE, 2016) | Spinal injury | Moderate | Moderate |
| Robert | Husband | 82 | Aviation | Caregiver | – | – | Unable to judge | Unable to judge |
| Jamesa | Husband | 74 | Purchaser | AD (2016) | 87/100 (ACE-R, 2016) | Neck pain | None | None |
| Mary | Wife | 74 | PA | Caregiver | – | – | None | None |
| Barbarab | Wife | 67 | Teacher | PCA | – | Neuralgia, osteoporosis | – | – |
| John | Husband | 67 | Electrician | Caregiver | – | – | Severe | Moderate |
| Williama | Husband | 78 | Lecturer | AD (2012) | 24/30 (MMSE, 2014) | Osteoarthritis (knees) | Mild | Mild |
| Carol | Wife | 74 | Probation officer | Caregiver | – | – | None | Mild |
| Richarda | Father | 83 | Tile making | Mixed (2015) | Unknown | Osteoarthritis (back) | Moderate | Moderate |
| David | Son | 52 | Cateringf | Caregiver | – | – | None | Mild |
| Marka | Husband | 73 | Probation officer | AD (2014) | 81/100 (ACE-R, 2014) | Tooth pain | None | None |
| Brenda | Wife | 68 | Nurse | Caregiver | – | – | None | Mild |
| Stevena | Husband | 57 | Postman | Mixed/FTD (2017) | Mild (MMSE, 2017) | Back pain | None | Mild |
| Michelle | Wife | 53 | Caregiver | – | – | None | Mild | |
| Lindaa | Wife | 77 | Administrative | FTD (2017) | 25/30 (MMSE, 2017) | Osteoarthritis, gout | Mild | Unanswered |
| Charles | Husband | 77 | Optometrist | Caregiver | – | – | Moderate | Moderate |
| Grega | Husband | 64 | RAF | Mixed/FTD (2017) | 48/100 (ACE-R) | Frozen shoulder, tennis elbow, spondylitis, osteoarthritis (hips) | Moderate | Moderate |
| Denise | Wife | 66 | Shop assistant | Caregiver | – | – | Moderate | Moderate |
aPerson with dementia. bPerson with dementia did not participate in the interview. cInformation obtained from Join Dementia Research records. dInformation obtained during the interview (from person with dementia or caregiver). eThe pain experienced by the person with dementia using the Revised Iowa Pain Thermometer. fCurrently employed. ACE-R = The Addenbrooke's Cognitive Examination Revised. AD = Alzheimer’s disease. FTD = frontotemporal dementia. MMSE = Mini-Mental State Examination Score. OT = occupational therapist. PA = personal assistant. PCA = posterior cortical atrophy. RAF = Royal Air Force.