Table 2. Factors associated with patient-reported experience measuresa among PLHIV registered with their GP
GP knowsenough about HIVGP is as involved as I want them to be in HIV careGood communicationbetween GP and HIV specialistComfortableasking GP questions about HIV
%agreementOR(95%CI) P value%agreementOR(95% CI) P value%agreementOR(95% CI) P value%agreementOR(95% CI)Pvalue
Overall 64.765.164.158.9
Gender and sexuality b <0.001<0.001<0.0010.018
Gay and bisexual men57.6169.2157.3157.61
Heterosexual men73.11.98 (1.65 to 2.37)67.40.94 (0.78 to 1.13)69.81.72 (1.41 to 2.10)65.41.39 (1.11 to 1.74)
All women69.01.63 (1.36 to1.96)58.50.63 (0.52 to 0.74)70.01.73 (1.41 to 2.11)56.20.93 (0.82 to 1.08)
Age , years <0.001<0.001<0.001<0.001
15–3456.3157.6152.3148.31
35–4962.51.27 (1.02 to 1.60)61.31.15 (0.93 to 1.43)61.51.44 (1.12 to 1.86)55.21.31 (1.01 to 1.69)
≥5069.31.74 (1.36 to 2.22)72.01.86 (1.43 to 2.43)70.02.10 (1.62 to 2.74)65.92.05 (1.57 to 2.67)
Residence 0.2790.039<0.0010.058
London65.0162.3159.1157.31
South of England61.90.88 (0.74 to 1.05)68.31.29 (1.03 to 1.61)63.01.18 (0.93 to 1.51)59.71.03 (0.79 to 1.33)
Midlands, East of England, and Wales64.40.99 (0.81 to 1.20)64.91.11 (0.87 to 1.41)69.01.55 (1.26 to 1.90)58.91.01 (0.84 to 1.22)
North of England66.91.10 (0.90 to 1.20)69.91.38 (1.05 to 1.81)71.41.72 (1.44 to 1.51)63.61.31 (1.06 to 1.61)
Education level 0.0330.158<0.001<0.001
Primary or less71.2169.3171.1166.71
Upper secondary66.30.80 (0.60 to 1.07)66.70.87 (0.66 to 1.14)65.90.81 (0.55 to 1.20)62.10.84 (0.62 to 1.14)
Technical & vocational66.60.80 (0.58 to 1.10)67.60.89 (0.60 to 1.32)68.10.89 (0.56 to 1.40)64.00.90 (0.65 to 1.24)
Bachelor’s degree63.00.69 (0.51 to 0.93)64.80.80 (0.61 to 1.04)63.30.73 (0.50 to 1.06)55.50.64 (0.47 to 0.86)
Postgraduate degree58.00.55 (0.37 to 0.82)62.70.72 (0.51 to 1.02)54.70.51 (0.34 to 0.76)51.50.54 (0.37 to 0.78)
Employment status 0.011<0.001<0.001<0.001
Employed62.2163.9160.7156.81
Unemployed68.21.32 (0.97 to 1.78)60.50.86 (0.66 to 1.12)64.41.15 (0.91 to 1.45)60.41.16 (0.95 to 1.41)
Economically inactivec 67.51.26 (1.09 to 1.47)71.21.37 (1.13 to 1.65)70.51.53 (1.28 to 1.82)63.41.30 (1.14 to 1.48)
Non-HIV comorbidities <0.0010.3280.3580.281
None67.4162.4162.8160.21
One61.60.84 (0.72 to 0.99)65.01.10 (0.87 to 1.40)62.51.07 (0.85 to 1.33)58.50.98 (0.84 to 1.14)
Two66.10.93 (0.76 to 1.15)67.31.23 (0.93 to 1.62)64.21.10 (0.89 to 1.35)61.00.98 (0.79 to 1.23)
Three67.91.09 (0.82 to 1.45)69.41.34 (1.00 to 1.80)67.01.23 (0.93 to 1.63)58.40.99 (0.79 to 1.24)
Four or more60.00.77 (0.63 to 0.94)66.01.17 (0.87 to 1.57)65.81.20 (098 to 1.46)56.40.87 (0.73 to 1.03)
Self-rated health <0.0010.0070.3510.023
Good/very good66.9166.2164.7160.71
Fair60.30.75 (0.63 to 0.90)64.20.91 (0.73 to 1.14)63.50.94 (0.80 to 1.11)55.50.81 (0.68 to 0.96)
Bad/very bad55.20.61 (0.45 to 0.83)57.80.70 (0.56 to 0.87)60.20.83 (0.64 to 1.07)54.00.76 (0.59 to 0.97)
Money for basic needs 0.004<0.0010.0180.271
Yes, always62.3170.1161.3160.11
Not always66.51.20 (1.06 to 1.36)61.30.66 (0.55 to 0.80)66.31.23 (1.04 to 1.46)58.00.92 (0.80 to 1.07)
ART status 0.7370.6110.9360.259
On ART64.7165.1164.0158.81
Not on ART63.20.92 (0.55 to 1.52)68.51.16 (0.64 to 2.11)63.90.98 (0.58 to 1.65)66.11.35 (0.80 to 2.29)
Viral suppression d 0.5170.0390.2090.566
Yes63.7165.1163.7158.51
No66.91.17 (0.72 to 1.92)51.70.58 (0.34 to 0.97)55.90.72 (0.43 to 1.20)54.70.86 (0.52 to 1.44)
Year of HIV diagnosis 0.0130.0380.0530.191
Pre-199659.2169.0164.1158.31
1996–200565.61.29 (1.07 to 1.55)62.70.74 (0.59 to 0.94)66.11.09 (0.94 to 1.26)57.10.95 (0.75 to 1.20)
2006–201764.61.26 (1.07 to 1.49)65.70.86 (0.69 to 1.08)61.40.90 (0.77 to 1.05)59.91.08 (0.87 to 1.34)
Worried about discrimination in health care due to HIV <0.001<0.001<0.001<0.001
Never70.5169.4167.6165.81
>1 year ago55.70.52 (0.42 to 0.64)61.10.68 (0.57 to 0.81)59.70.70 (0.60 to 0.83)50.40.52 (0.44 to 0.62)
In the last year49.80.42 (0.34 to 0.51)54.30.52 (0.40 to 0.69)53.90.56 (0.45 to 0.70)41.40.37 (0.30 to 0.45)
Avoided seeking health care when needed due to HIV <0.001<0.001<0.001<0.001
Never67.6168.3165.7162.31
>1 year ago53.00.55 (0.42 to 0.73)59.30.67 (0.51 to 0.90)56.60.67 (0.51 to 0.89)46.70.53 (0.42 to 0.66)
In the last year43.60.37 (0.31 to 0.45)46.50.40 (0.33 to 0.50)52.70.58 (0.44 to 0.77)36.30.35 (0.28 to 0.43)
  • ART = antiretroviral therapy. CI = confidence intervals. OR = odds ratio. PLHIV = people living with HIV.

  • aThe four 5-item Likert scale patient-reported experience measures (PREMS) on experience with their GP as relates to their HIV: 1)'My GP knows enough about my HIV condition and treatment'; 2) 'My GP is as involved as I want them to be with my HIV care'; 3) 'My HIV specialist and my GP communicate well regarding my health'; 4)'I am comfortable asking my GP questions about HIV'. Responses of ‘Strongly Agree‘ and ‘Agree‘ were combined, and ‘Disagree‘, ‘Strongly Disagree‘, and ‘Don’t know or Not applicable‘ were combined.

  • bTransmen and transwomen are included in the gender groups with which they self-identified. Due to small numbers, those who identify as non-binary/in another way (representing 0.5% of Positive Voices respondents) are excluded from the binary gender breakdown. Gay and bisexual men are identified as MSM (men who have sex with men) in the main text.

  • cEconomically inactive includes individuals who are not in employment or unemployed, including those who are retired, looking after family, long-term sick, carers, students, and those whose immigration status does not permit them to do paid work.

  • dViral suppression defined as VL <200 copies/ml in last reported viral load result in 2017.