TY - JOUR T1 - Understanding the patient voice in gout: a quantitative study conducted in Europe JF - BJGP Open JO - BJGP Open DO - 10.3399/bjgpopen20X101003 SP - bjgpopen20X101003 AU - Marc De Meulemeester AU - Elsa Mateus AU - Hilda Wieberneit-Tolman AU - Neil Betteridge AU - Lucy Ireland AU - Gudula Petersen AU - Nina Jeanette Maske AU - Tim L Jansen AU - Fernando Perez-Ruiz Y1 - 2020/02/19 UR - http://bjgpopen.org/content/early/2020/02/17/bjgpopen20X101003.abstract N2 - Background Although commonly diagnosed, gout often remains a poorly managed disease. This is partially due to a lack of awareness of the long-term effect of gout among patients and healthcare professionals.Aim To understand unmet needs for patients and provide insight into achieving better treatment.Design & setting A quantitative online questionnaire collected from 1100 people with gout from 14 countries within Europe.Method Patients were recruited to complete an online survey via healthcare professional (HCP) referral, patient associations, or market research panels. Patients were included if they had been diagnosed with gout by a physician. Prior to commencement, patients were made aware that this study was sponsored by GrĂ¼nenthal. The responses collected were collated and analyses were performed.Results Patients had an average of 2.9 gout flares within a 12-month period. Although 79% of patients were satisfied with treatment, inadequate gout control was also reported by 71% of patients. Furthermore, 84% experienced moderate-to-severe pain with their most recent flare. Of those who acknowledged treatment dissatisfaction, only 24% discussed other options with their GP. Most patients reported irregular follow-up and serum uric acid (sUA) monitoring. In addition, loss of belief that more can be done was a key barrier for patients.Conclusion Patients reported severe pain and social burden, coupled with low treatment expectation and lack of awareness of target sUA. Education around knowing and reaching sUA target is needed so that patients can receive and GPs can deliver higher quality management. ER -