Management of hidradenitis suppurativa in UK primary care: cross-sectional survey

Background Hidradenitis suppurativa (HS) is a painful, chronic, inflammatory skin condition affecting the skin folds. It is frequently misdiagnosed, leading to delays in care and the progression of the disease to permanent scarring.

Aim To understand the level of knowledge and confidence of HCPs in primary care managing patients with HS. To establish their ability to recognise the early signs of HS, awareness of associated comorbidities, and recognition of treatment options available in primary care.

Design & setting A survey was distributed to HCPs working in primary care

Method The survey was disseminated via weekly GP bulletins distributed by local integrated care boards, the primary care dermatology society mailing lists and at professional events.

Results Of 187 respondents, most (93%) did not have a specialist role in dermatology or a postgraduate qualification in dermatology (69%), 36 (20%) were not doctors, and there was a good geographical spread over the UK. Of the respondents, 74% felt confident diagnosing HS, but only 39% were confident in managing the pain associated with the disease. Perceived confidence did not correlate with understanding the importance of early referral to secondary care where multiple skin sites were affected.

Conclusion Further education in diagnosing and managing HS in primary care is needed. Future research could focus on developing a tool to support the diagnosis of HS in primary care and a clear, primary care-focused management guideline for identified patients.