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Research

Changes in heart failure healthcare in general practice during the COVID-19 pandemic: a survey

Raphael Rothenberger, Thomas Blakeman, Carolyn A Chew-Graham, Faye Forsyth, Muhammad Hossain, Emma Sowden and Christi Deaton
BJGP Open 2025; 9 (3): BJGPO.2024.0138. DOI: https://doi.org/10.3399/BJGPO.2024.0138
Raphael Rothenberger
1 Department of Cardiology, University Hospital Bern, Bern, Switzerland
2 Harvard T.H. Chan School of Public Health, Boston, United States
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  • For correspondence: rr669{at}cantab.ac.uk
Thomas Blakeman
3 Centre for Primary Care and Health Services Research, School of Health Sciences, The University of Manchester Division of Population Health Health Services Research and Primary Care, Manchester, United Kingdom
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Carolyn A Chew-Graham
4 Faculty of Medicine and Health Sciences, Keele University, Newcastle-under-Lyme, United Kingdom
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Faye Forsyth
5 Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium
6 Department of Primary Care and Public Health, University of Cambridge School of Clinical Medicine, Cambridge, United Kingdom
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  • ORCID record for Faye Forsyth
Muhammad Hossain
7 School of Health Sciences, Birmingham City University, Birmingham, United Kingdom
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Emma Sowden
8 Division of Nursing, Midwifery and Social Work, University of Manchester, Manchester, United Kingdom
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Christi Deaton
6 Department of Primary Care and Public Health, University of Cambridge School of Clinical Medicine, Cambridge, United Kingdom
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Article Figures & Data

Figures

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    Figure 1. Provider assessment of the effectiveness of remote consultations
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    Figure 2. Provider confidence in using telephone assessment for patient care
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    Figure 3. Responses to heart failure awareness and COVID-19 shielding advice among people with heart failure

Tables

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    Table 1. Participant characteristics
    HCPs (N=22)Patients and carers (N=21)
    ProfessionGP=15
    GP trainee=1
    Cardiologist=3
    Nurse=3 (one each of PN, HFSN, and academic)
    Age21–30 years=2
    31–40 years=10
    41–50 years=7
    51–60 years=3
    31–40 years=2
    61–70 years=7
    71–80 years=5
    81–90 years=2
    Not disclosed=5
    GenderFemale=15
    Male=7
    Female=7
    Male=10
    Not disclosed=4
    Geographical areaEast of England=8
    North West=5
    West Midlands=3
    Yorkshire & Humber=1
    SouthWest=1
    Outside of England=3
    East of England=11
    NorthWest=6
    East Midlands=1
    Not disclosed=2
    Living situationLive alone=3
    Live with spouse only=12
    Live with multiple family members=4
    Live with friends=1
    Not disclosed=1
    Number of long-term conditionsOne to two=5
    Three to five=12
    Six to eight=3
    Not disclosed=1
    • GP = general practitioner, HCP = healthcare provider, HFSN = heart failure specialist nurse, PN = practice nurse.

    • View popup
    Table 2. Questions that were only asked of people with heart failure
    Questions for patientsPatient median score (IQR) round 1Patient median score (IQR) round 2 if applicable
    Please rate the importance of each item below in influencing your decision to shield
    GPs recommendation8.0 (1.0–9.0)Consensus reached
    Specialist healthcare provider recommendation6.0 (1.0–9.0)7.0 (2.0–7.50)
    Decided to do without a recommendation from NHS or HCP6.0 (1.5–9.0)9.0 (7.0–9.0)
    Knowledge of age and illness8.5 (7.0–9.0)Consensus reached
    Letter received from NHS6.0 (2.0–9.0)5.0 (2.5–9.0)
    Guidance received from NHS on shielding criteria7.0 (3.0–9.0)Consensus reached
    Living with someone who needed to shield5.0 (1.0–9.0)8.0 (5.2–9.0)
    Information about COVID-19 and its risks has come from multiple sources. Please rate the trustworthiness of information from these sources from 1 not trustworthy at all to 9 extremely trustworthy
    General practice8.0 (6.0–9.0)Consensus reached
    Specialist clinic at hospital9.0 (7.0–9.0)Consensus reached
    HFSN8.0 (1.0–9.0)Consensus reached
    NHS England7.0 (6.0–8.0)Consensus reached
    Internet sources5.0 (2.0–7.0)5.0 (3.0–5.0)
    District council4.0 (1.0–6.75)5.0 (4.0–8.0)
    Healthcare journals3.0 (1.0–6.0)Consensus reached
    Newspaper4.0 (1.0–6.0)4.0 (1.5–5.7)
    Television news6.0 (2.0–7.0)5.5 (3.2–7.0)
    Social media1.0 (1.0–3.75)Consensus reached
    • HCP = healthcare provider, HFSN = heart failure specialist nurse

    • View popup
    Table 3. Questions asked of both people with HF and healthcare providers
    QuestionScore round 1
    Median (IQR)
    Score round 2 if applicable
    Supported self-management (eg, education and guidance from clinicians) has received increasing emphasis given reduced face-to-face consultations. Please rate the importance of each item below
    Supplying free devices such as weighing scales and blood pressure monitors8.0 (5.0–9.0)Consensus reached
    Linking devices to a telemonitoring system7.0 (3.5–9.0)Consensus reached
    Patient willingness and ability to record and share information8.0 (7.0–9.0)Consensus reached
    Access to providers trained to support home monitoring and self-management8.0 (5.0–9.0)Consensus reached
    Supporting patients to know and understand their diagnosis of heart failure, including type (reduced or preserved ejection fraction)8.0 (7.0–9.0)Consensus reached
    Safe space in hospital or practice for assessment of patients when self-monitoring indicates problems that cannot be resolved satisfactorily by remote consultation9.0 (7.0–9.0)Consensus reached
    In times of limited healthcare access, what is useful for consultation and communication? Please rate the following
    Telephone9.0 (6.5–9.0)Consensus reached
    Video conferencing7.0 (5.0–9.0)Consensus reached
    Email6.0 (3.0–8.0)5.0 (3.0–7.0)
    Text messaging7.0 (3.0–8.0)Consensus reached
    Home visit from HFSN8.0 (5.0–9.0)Consensus reached
    Authority to determine when clinic or face-to-face practice visit is needed9.0 (6.5–9.0)Consensus reached
    Virtual multidisciplinary team to discuss case7.0 (5.0–8.0)Consensus reached
    Having a lead HF consultant for triage7.0 (5.2–9.0)Consensus reached
    In a post-pandemic world, healthcare is likely to remain changed and not return to previous practices. Please rate the importance of continuing each item below from 1 (not important at all) to 9 (extremely important) in post-pandemic healthcare
    Increased use of remote consultations by telephone or video link8.0 (6.0–9.0)Consensus reached
    Virtual meetings of multidisciplinary teams8.0 (5.0–8.7)Consensus reached
    Specialist led heart failure secure email system to support GPs and local primary care teams8.0 (4.2–9.0)Consensus reached
    Strategies to improve social connections form part of annual reviews and clinic visits7.0 (4.2–8.0)Consensus reached
    Ensuring patients are always asked about loneliness and social connections7.0 (5.0–8.0)Consensus reached
    Access to heart failure specialist nurses regardless of type of heart failure (preserved and reduced ejection fraction)8.0 (7.0–9.0)Consensus reached
    Supplying free devices such as weighing scales and blood pressure monitors7.0 (5.2–9.0)Consensus reached
    Having a secure system for patients and providers to share information8.0 (7.0–9.0)Consensus reached
    What would help you (or the patient you care for) sustain a healthy lifestyle? Please rate the importance of each item below from 1 (not important at all) to 9 (extremely important)
    Financial incentives3.0 (1.0–5.5)Consensus reached
    Text messages5.0 (2.0–7.0)4.0 (2.0–6.0)
    Peer support via remote access6.0 (4.0–8.0)6.0 (4.0–7.0)
    Socially distanced activity with peers6.5 (6.0–7.0)6.0 (5.0–7.0)
    Fitness trackers6.0 (4.0–7.0)6.0 (5.0–7.0)
    Telephone calls6.0 (3.0–7.2)5.0 (2.0–8.0)
    Keeping a record that could be shared6.0 (4.7–8.0)6.0 (5.0–8.0)
    • HFSN = heart failure specialist nurse

Supplementary Data

  • Roth_10.3399BJGPO.2024.0138_supp.docx -

    Supplementary material is not copyedited or typeset, and is published as supplied by the author(s). The author(s) retain(s) responsibility for its accuracy. 

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Changes in heart failure healthcare in general practice during the COVID-19 pandemic: a survey
Raphael Rothenberger, Thomas Blakeman, Carolyn A Chew-Graham, Faye Forsyth, Muhammad Hossain, Emma Sowden, Christi Deaton
BJGP Open 2025; 9 (3): BJGPO.2024.0138. DOI: 10.3399/BJGPO.2024.0138

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Changes in heart failure healthcare in general practice during the COVID-19 pandemic: a survey
Raphael Rothenberger, Thomas Blakeman, Carolyn A Chew-Graham, Faye Forsyth, Muhammad Hossain, Emma Sowden, Christi Deaton
BJGP Open 2025; 9 (3): BJGPO.2024.0138. DOI: 10.3399/BJGPO.2024.0138
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Keywords

  • general practice
  • heart failure
  • remote consultations

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