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Domain Where items were found Full scale used? Mobility Mobility subscale of WHO Disability Assessment Schedule (WHODAS 2.0)26 Yes Dexterity 3 items from Arthritis Impact Measurement Scales 2-Short Form27 No Fatigue Fatigue Severity Scale short form28 ,a Yes Pain Pain portion of Short Form (SF)-36 questionnaire23 Yes Speech 3 items from the Living With Neurologically Based Speech Difficulties29 No Mental health WHO-5 Well-Being Index30 Yes Health maintenance/self-care Health Confidence Score31 Yes Swallowing Pharyngeal symptoms from swallowing-quality of life (SWAL-QOL) questionnaire21 No aAn item was added to this scale concerning the effects of fatigue on speech.
Question Frequencies and proportions, n (%) 1) How would you describe your ethnicity or ethnic background? Arab 1 (0.3%) Asian 9 (2.3%) Black 9 (2.3%) Mixed 8 (2.0%) White 365 (92.4%) Prefer not to say 3 (0.8%) 2) How would you describe your gender? Male 98 (24.8%) Non-binary 3 (0.8%) Female 293 (74.2%) Any other gender 1 (0.3%) 3) How would you describe your sexual orientation? Asexual 13 (3.3%) Bisexual 32 (8.1%) Gay or Lesbian 14 (3.5%) Heterosexual 308 (78.0) Queer 6 (1.5%) Prefer not to say 21 (5.3%) Any other 1 (0.3%) 4) What type of CP do you have? Ataxic 18 (4.6%) Dyskinetic 27 (6.8%) Mixed 81 (20.5%) Spastic 252 (63.8%) Not sure or prefer not to say 17 (4.3%) 5) How old are you? 18–24 years 28 (7.1%) 25–34 years 103 (26.1%) 35–44 years 103 (26.1%) 45–54 years 74 (18.7%) 55–64 years 64 (16.2%) ≥65 years 22 (5.6%) Prefer not to say 1 (0.3%) 6) What type of spastic CP do you have? Diplegia (two lower limbs affected) 105 (41.7%) Hemiplegia (one side of the body affected) 77 (30.6%) Triplegia (three limbs affected) 9 (3.6%) Quadriplegia (four limbs affected) 61 (24.2%) CP = cerebral palsy.
Age, years (18–34, 35–54, ≥55) χ2,significance level,Phi coefficient Percentages Mobility I avoid activities due to a fear of falling χ2 = 8.1, P<0.05Phi = 0.14 55.7% (18–34) n = 7368.9% (35–54) n = 12272.1% (≥55) n = 62 Difficulty walking a long distance, such as a mile χ2 = 8.2, P<0.05Phi = 0.14 61.1% (18–34) n = 8070.6% (35–54) n = 12579.1% (≥55) n = 68 Difficulty standing up from sitting down χ2 = 15.5, P<0.01Phi =0.20 48.1% (18–34) n = 6362.1% (35–54) n = 11074.4% (≥55) n = 64 Due to my fear of falling, I avoid lifting and carrying objects χ2 = 9.5, P<0.01Phi = 0.15 29.8% (18–34) n = 3946.9% (35–54) n = 8343.0% (≥55) n = 37 Due to my fear of falling, I avoid walking on different surfaces χ2 = 8.0, P<0.05Phi = 0.14 37.4% (18–34) n = 4953.7% (35–54) n = 9546.5% (≥55) n = 40 Do you walk with an aid? (walking stick, walker or wheelchair) χ2 = 7.6, P<0.05Phi = 0.14 44.3% (18–34) n = 5848.0% (35–54) n = 8562.8% (≥55) n = 54 Pain My level of bodily pain is moderate or severe χ2 = 6.3, P<0.05Phi = 0.13 59.5% (18–34) n = 7868.4% (35–54) n = 12175.6% (≥55) n = 65 Pain interferes with my work (either outside the home or housework) χ2 = 8.1, P<0.05Phi = 0.15 59.1% (18–34) n = 7573.3% (35–54) n = 12173.8% (≥55) n = 62 Swallowing Problems with coughing χ2 = 7.5, P<0.05Phi = 0.14 41.2% (18–34) n = 5452.5% (35–54) n = 9359.3% (≥55) n = 51 Totals for age groups: 18–34 years n = 131; 35–54 years n = 177; ≥55 years n = 86
Supplementary Data
- BGB_10.3399BJGPO.2023.0028_supp.pdf -
Supplementary material is not copyedited or typeset, and is published as supplied by the author(s). The author(s) retain(s) responsibility for its accuracy.
- BGB_10.3399BJGPO.2023.0028_supp.pdf -
Supplementary material is not copyedited or typeset, and is published as supplied by the author(s). The author(s) retain(s) responsibility for its accuracy.
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The impact of ageing on adults with cerebral palsy: the results of a national online survey
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