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Participants’ demographics Current age Mean = 27 (SD = 8.1)Range 18–71 Family history of PCOS Yes = 38 (25.9%)No = 109 (74.1%) Age at diagnosis Mean = 21.2 (SD = 5.3)Range = 14–38 Years since diagnosis Mean = 5.8 (SD = 7.3)Range = 0–42 Delay to diagnosis Mean = 3.38 (3.1)Range = 0–12 Ethnicity White = 124 (84.4%) Black = 2 (1.4%) Asian = 10 (6.8%) Other = 11 (7.5%) Age of symptom onset 10–15 = 71 (48.2%) 16–20 = 51 (34.7%) 21–25 = 16 (10.9%) 26–30 = 4 (2.7%) ≥31 = 5 (3.4%) HCP demographics at diagnostic consultation Gendera Male = 60 (41.4%) Female = 85 (58.6%) Healthcare settinga Private = 33 (22.8%) Public = 112 (77.2%) Healthcare professiona Nurse = 5 (3.4%) GP = 68 (46.9%) Gynaecologist = 50 (34.5%) Consultant = 22 (15.2%) HCP = healthcare professional. SD = standard deviation.
aMissing data n = 2.
Low(1–3.5) Medium(3.6–4.5) High(4.6–7.0) Mean (SD) Distress relief 53 (36.8%) 74 (51.4%) 17 (11.8%) 3.3 (1.3) Communication comfort 21 (14.6%) 85 (59.0%) 38 (26.4%) 4.11 (1.2) Rapport 38 (26.4%) 75 (52.1%) 31 (21.3%) 3.89 (1.4) Missing data n = 3. SD = standard deviation.
- Table 3. Describing the consultation language used during diagnosis: framing of the problem
Abnormal, n Unusual, n Irregular, n Raised, n Fertility Testosterone 36 7 16 68 a Periods 26 6 117 a 10 Infertility 15 13 19 33 a Weight 19 6 14 69 a Appearance Acne 24 6 11 48 a Hirsutism 25 12 1 33 a Masculine characteristics 12 11 2 39 a Total frequency 157 61 180 300 a aDenotes most frequent use.
- Table 4. Describing the consultation language used during diagnosis: focus of the solution
Focus of solution Yes, n/N (%) Rank a Appearance Acne medication 37/142 (26.1) 8 Hair management/removal 35/144 (24.3) 9 Fertility Metformin 46/144 (31.9) 6 Use of implant 18/142 (12.7) 11 Use of coil 29/142 (20.3) 10 Early conception 50/143 (35) 5 Oral contraception 102/145 (70.3) 1 Weight management Lose weight 90/143 (62.9) 2 Manage weight 86/144 (59.7) 4 Alter diet 87/144 (60.4) 3 Cut out food groups 43/143 (30.1) 7 a1 = most frequent, 11 = least frequent.
Body esteem Quality of life Body diss(β, p) Rest eating(β, p) Self identity(β, p) Fertility concern(β, p) Sexual function(β, p) Physical health(β, p) Hirsutism(β, p) Total quality of life(β, p) Demographics Current age –0.150.14 –0.140.16 –0.180.07 –0.080.44 0.0090.92 –0.140.13 0.080.37 –0.060.49 Diagnosis age 0.140.15 0.030.78 0.23 0.01 a 0.170.07 0.150.11 0.130.13 –0.070.41 0.160.06 HCP gender 0.170.06 0.020.85 0.140.11 0.100.23 0.030.75 0.030.71 0.120.13 0.110.16 HCP qual –0.060.5 –0.060.53 –0.150.08 –0.070.44 –0.0010.99 –0.130.11 –0.100.2 –0.130.11 Model 1 adj R2 /F/ p 0.005/1.17/0.3 0.003/1.12/0.35 0.03/2.16/0.08 –0.002/0.94/0.44 –0.008/0.72/0.6 0.02/1.89/0.12 –0.01/0.31/0.8 –0.003/0.88/0.48 Communication satisfaction Distress relief –0.190.16 –0.070.59 –0.090.43 –0.090.45 –0.120.35 –0.010.92 –0.140.22 –0.150.19 Comm comfort –0.260.03a –0.26 0.03 a –0.24 0.02 a –0.27 0.01 a –0.120.29 –0.33 0.001 a –0.29 0.004 a –0.33 0.001 a Rapport 0.210.15 0.150.15 0.110.43 0.140.31 0.090.31 0.170.19 0.26 0.04 a 0.230.07 Model 2 adj R2/ F/p 0.07/2.52/0.02 a 0.05/2.01/0.06 a 0.09/3.23/0.003 a 0.07/2.48/0.02 a 0.003/1.37/0.18 0.11/3.54/0.002 a 0.07/2.48/0.02 a 0.12/3.86/0.001 a Framing and focus of language used Irregular –0.0050.9 –0.020.84 –0.010.87 0.21 0.01a 0.090.31 0.130.09 –0.070.38 0.070.35 Raised 0.28 0.007 a 0.150.15 0.25 0.009 a 0.16 0.08 a 0.26 0.008 a 0.26 0.004 a 0.33 0.001 a 0.37 0.001 a Abnormal 0.060.52 0.050.61 0.090.24 –0.020.79 –0.0040.96 0.110.18 0.120.12 0.110.18 Unusual –0.0060.94 –0.110.22 –0.120.14 0.00010.99 –0.010.87 –0.050.51 –0.110.14 –0.090.20 Appearance –0.080.38 –0.050.59 0.070.38 –0.040.67 0.010.87 –0.020.77 0.17 0.03 a 0.080.33 Fertility 0.060.5 0.090.34 0.040.65 0.130.13 0.0080.93 0.18 0.02 a 0.040.61 0.090.23 Weight –0.0030.9 0.120.21 –0.040.65 0.030.77 –0.21 0.03 a 0.010.90 0.040.68 –0.070.39 Final Model adj R2/F/ p 0.10/2.06/0.02 a 0.07/1.77/0.05 a 0.15/2.76/0.001 a 0.12/2.40/0.005 a 0.03/1.37/0.17 0.22/3.92/0.001 a 0.24/4.3/0.001 a 0.27/4.73/0.001 a a P<0.05
Body diss = body dissatisfaction. Comm comfort = communication comfort. HCP = healthcare professional. Rest eating = restrained eating.
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