Article Figures & Data
Tables
Total, N = 4763 n % Female 2686 56 Age, years, mean (± SD) 62 (±12) Educationa High 2276 48 Middle 1908 40 Low 464 10 Other 61 1 Missing 54 1 Diagnosis Breast cancer 1231 26 Haematological cancers 874 18 Colorectal cancer 787 16 Prostate cancer 569 12 Bladder cancer 270 6 Gynaecologic cancer 179 4 Lung cancer 153 3 Melanoma 125 3 Esophageal cancer 105 2 Other 470 10 Years since last received cancer treatment, median (IQR) 2 1–6 Patient reported cancer stage Cured 2166 46 Will probably be cured 901 19 Will probably not be cured 1256 26 Don’t know/NA 440 9 aEducation is categorised as high (university or higher professional education), middle (secondary education), and low (primary education or no education). IQR = interquartile range. NA = not applicable. SD = standard deviation.
- Table 2. Need for GP involvement in cancer care and whether GP involvement occurred. Presented for total and stratified per subgroup
Need for GP involvement in cancer care any time after diagnosis Need (yes) Contact occurred? (yes)a Total Of total Of need n n % n % All responders 4763 2804 59 2193 79 Sex Male 2077 1073 52 873 82 Female 2686 1731 64 1320 77 Age Aged <65 years 2537 1577 62 1245 80 Aged ≥65 years 2226 1227 55 948 78 Education Low educationb 464 254 55 188 75 Middle educationb 1908 1134 59 849 76 High educationb 2276 1351 59 1105 82 Diagnosis Haematological cancers 874 478 55 380 80 Colorectal cancer 787 402 51 307 78 Bladder cancer 270 128 47 105 83 Gynaecologic cancer 179 121 68 91 76 Melanoma cancer 125 75 60 64 85 Breast cancer 1231 791 64 582 74 Prostate cancer 569 323 57 276 86 Lung cancer 153 105 69 83 81 Oesophageal cancer 105 72 69 63 88 Years since last received cancer treatment Last treatment ≤2 years ago 2404 1462 61 1215 84 Last treatment ≥3 years ago 2359 1342 57 978 74 Patient reported cancer stage Cured 2166 1180 55 875 75 Will probably be cured 901 535 59 413 78 Will probably not be cured 1256 825 66 699 85 aPercentage ‘Contact occurred? (yes)’ is calculated for those who responded to have a need for GP involvement and filled in the question ‘Contact occurred?’. Denominators vary for this question and are slightly lower than the total number of patients who indicated to have a need for GP involvement, due to missing data (i.e. not all respondents filled in the follow-up question ‘Contact occurred’). Further information is available from the authors on request bEducation is categorised as high (university or higher professional education), middle (secondary education), and low (primary education or no education).
- Table 3. Needs to have important topics in the shared decision-making process for cancer treatment addressed in a GP consultation and whether this topic was addressed
My GP should … Listen to my worries and considerations about the diagnosis, treatment and its consequences Check if I understand the information about my diagnosis, treatment, and its consequences Discuss what I think is important in my life and the consequences of treatment options for these priorities Explain to me the importance of my own opinion when making a treatment decision Need (yes) Topic addressed?(yes)a Need (yes) Topic addressed? (yes)a Need (yes) Topic addressed? (yes)a Need (yes) Topic addressed? (yes)a Total Of total Of need Of total Of need Of total Of need Of total Of need n n % n % n % n % n % n % n % n % All responde r s 4526 3724 82 1744 47 3130 69 542 17 3006 66 461 15 3045 67 294 10 Sex Male 1966 1561 79 755 48 1349 69 236 18 1274 65 217 17 1297 66 128 10 Female 2560 2163 85 989 46 1781 70 306 17 1732 68 244 14 1748 68 166 10 Age Aged <65 years 2434 2059 85 1008 49 1685 69 326 19 1639 67 257 16 1665 68 160 10 Aged ≥65 years 2092 1665 80 736 44 1445 69 216 15 1376 65 204 15 1380 66 134 10 Education Low educationb 422 326 77 127 39 308 73 51 17 296 70 33 11 296 70 32 11 Middle educationb 1810 1495 83 644 43 1305 72 221 17 1237 68 183 15 1239 69 119 10 High educationb 2185 1812 83 930 51 1439 66 260 18 1394 64 238 17 1435 66 138 10 Diagnosis Haematological cancers 832 680 82 311 46 530 64 90 17 512 62 75 15 507 61 38 8 Colorectal cancer 732 568 78 254 45 517 71 94 18 469 64 65 14 483 66 42 9 Bladder cancer 256 201 79 83 41 176 69 26 15 176 69 14 8 176 69 10 6 Gynaecologic cancer 170 141 83 66 47 119 70 16 13 119 70 17 14 127 75 11 9 Melanoma cancer 119 97 82 51 53 87 73 13 15 79 66 18 23 83 70 11 13 Breast cancer 1178 1002 85 442 44 818 69 143 18 801 68 104 13 804 68 76 10 Prostate cancer 543 447 82 229 51 384 71 70 18 358 66 67 19 377 69 52 14 Lung cancer 145 124 86 64 52 104 72 20 19 105 72 26 25 95 66 12 13 Oesophageal cancer 104 84 81 54 64 76 73 15 20 75 72 19 25 78 75 12 15 Years since last received cancer treatment Last treatment ≤2 years ago 2307 1897 82 995 53 1532 66 289 19 1510 66 289 19 1497 65 171 11 Last treatment ≥3 years ago 2219 1827 82 749 41 1598 72 253 16 1496 67 172 12 1548 70 123 8 Patient reported cancer stage Cured 2035 1658 82 711 43 1438 71 228 16 1340 66 147 11 1398 69 99 7 Will probably be cured 867 708 82 329 47 606 70 116 19 570 66 81 14 598 69 52 9 Will probably not be cured 1208 1017 84 553 54 806 67 142 18 818 68 200 24 776 64 115 15 aPercentage ‘Topic addressed? (yes)’ is calculated for those who responded to have a need for GP involvement and filled in the question ‘Topic addressed?’ Denominators vary for this question and are slightly lower than thetotal number of patients who indicated to have a need to have SDM topics addressed by the GP, dueto missing data (i.e. not all respondents filled in the follow-up question‘Topic addressed’). Further information is available from the authors onrequest. bEducation is categorised as high (university or higher professional education), middle (secondary education), and low (primary education or no education).
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SUPPLEMENTARY MATERIALS
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