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Research

Finding the 'right' GP: a qualitative study of the experiences of people with long-COVID

Tom Kingstone, Anna K Taylor, Catherine A O'Donnell, Helen Atherton, David N Blane and Carolyn A Chew-Graham
BJGP Open 2020; 4 (5): bjgpopen20X101143. DOI: https://doi.org/10.3399/bjgpopen20X101143
Tom Kingstone
1School of Medicine, Faculty of Medicine and Health Sciences, Keele University, Keele, UK
2Research and Innovation Department, St George's Hospital, Midlands Partnership NHS Foundation Trust, Stafford, UK
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  • ORCID record for Tom Kingstone
  • For correspondence: t.kingstone@keele.ac.uk
Anna K Taylor
3School of Medicine, Leeds Institute of Health Sciences, Faculty of Medicine and Health, University of Leeds, Leeds, UK
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Catherine A O'Donnell
4General Practice & Primary Care, Institute of Health & Wellbeing, University of Glasgow, Glasgow, UK
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Helen Atherton
5Unit of Academic Primary Care, Warwick Medical School, University of Warwick, Coventry, UK
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David N Blane
4General Practice & Primary Care, Institute of Health & Wellbeing, University of Glasgow, Glasgow, UK
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Carolyn A Chew-Graham
1School of Medicine, Faculty of Medicine and Health Sciences, Keele University, Keele, UK
2Research and Innovation Department, St George's Hospital, Midlands Partnership NHS Foundation Trust, Stafford, UK
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  • RE: "Finding the 'right' GP" parallels between long-COVID and rare conditions
    Amy Hunter
    Published on: 04 May 2021
  • Published on: (4 May 2021)
    Page navigation anchor for RE: "Finding the 'right' GP" parallels between long-COVID and rare conditions
    RE: "Finding the 'right' GP" parallels between long-COVID and rare conditions
    • Amy Hunter, Director of Research, Genetic Alliance UK

    Dear Sir
    Kingstone et al focus in on the important role of GP services for people with long COVID. Their key findings (“the ‘hard and heavy work’ of enduring and managing symptoms and accessing care; living with uncertainty… and the importance of finding the 'right' GP” who can provide the appropriate empathy and support) have remarkable parallels with the experience of people living with rare conditions. Collectively rare conditions make up a substantial proportion of the burden of disease in the UK, with around 3.5 million people affected. And we have known for a long time that the problems raised by Kingstone are the cause of poor mental ill health and a compromised ability to lead a normal life for many of those living with rare conditions.
    We hope that the harsh light being shone on the ability of the health service to meet the needs of people with an ‘unknown’, complex and debilitating condition (long COVID) will also remind us how important it is to improve services for rare diseases. We give our full support to the NHS and policymakers as they grasp the opportunity represented by the new UK Rare Diseases Framework and the development of effective and bold national plans in response.
    For information about the Framework and the national campaign to improve the lives of people living with a rare condition, your readers can visit raredisease.org.uk.
    Yours faithfully

    Dr Amy Hunter
    Genetic Alliance UK
    geneticalliance.o...

    Show More

    Dear Sir
    Kingstone et al focus in on the important role of GP services for people with long COVID. Their key findings (“the ‘hard and heavy work’ of enduring and managing symptoms and accessing care; living with uncertainty… and the importance of finding the 'right' GP” who can provide the appropriate empathy and support) have remarkable parallels with the experience of people living with rare conditions. Collectively rare conditions make up a substantial proportion of the burden of disease in the UK, with around 3.5 million people affected. And we have known for a long time that the problems raised by Kingstone are the cause of poor mental ill health and a compromised ability to lead a normal life for many of those living with rare conditions.
    We hope that the harsh light being shone on the ability of the health service to meet the needs of people with an ‘unknown’, complex and debilitating condition (long COVID) will also remind us how important it is to improve services for rare diseases. We give our full support to the NHS and policymakers as they grasp the opportunity represented by the new UK Rare Diseases Framework and the development of effective and bold national plans in response.
    For information about the Framework and the national campaign to improve the lives of people living with a rare condition, your readers can visit raredisease.org.uk.
    Yours faithfully

    Dr Amy Hunter
    Genetic Alliance UK
    geneticalliance.org.uk

    Show Less
    Competing Interests: None declared.
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Finding the 'right' GP: a qualitative study of the experiences of people with long-COVID
Tom Kingstone, Anna K Taylor, Catherine A O'Donnell, Helen Atherton, David N Blane, Carolyn A Chew-Graham
BJGP Open 2020; 4 (5): bjgpopen20X101143. DOI: 10.3399/bjgpopen20X101143

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Finding the 'right' GP: a qualitative study of the experiences of people with long-COVID
Tom Kingstone, Anna K Taylor, Catherine A O'Donnell, Helen Atherton, David N Blane, Carolyn A Chew-Graham
BJGP Open 2020; 4 (5): bjgpopen20X101143. DOI: 10.3399/bjgpopen20X101143
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Keywords

  • primary care
  • primary healthcare
  • COVID-19
  • long-COVID
  • persistent symptoms
  • qualitative research
  • severe acute respiratory syndrome coronavirus 2
  • headache
  • chest pain
  • fatigue
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  • cognitive impairment

More in this TOC Section

  • Translating primary care to telehealth: analysis of in-person consultations on diabetes and cardiovascular disease
  • Primary care physicians’ perceptions of social determinants of health recommendations: a qualitative study
  • Ethnic minority GP trainees at risk for underperformance assessments: a quantitative cohort study
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