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Research

General practice recording of adverse childhood experiences: a retrospective cohort study of GP records

Andrea E Williamson, Ross McQueenie, David A Ellis, Alex McConnachie and Philip Wilson
BJGP Open 2020; 4 (1): bjgpopen20X101011. DOI: https://doi.org/10.3399/bjgpopen20X101011
Andrea E Williamson
1 Senior Clinical University Lecturer, School of Medicine, Dentistry & Nursing, General Practice & Primary Care, University of Glasgow, Glasgow, UK
2 GP and MO Addictions, NHS Greater Glasgow and Clyde, Glasgow, UK
MBChB, MPH, PhD, FRCGP, FHEA, DTM&H
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  • For correspondence: andrea.williamson{at}glasgow.ac.uk
Ross McQueenie
3 Research Associate, General Practice & Primary Care, University of Glasgow, Glasgow, UK
BSc Hons, PhD
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David A Ellis
4 Lecturer in Computational Social Science, Department of Psychology, Lancaster University, Lancaster, UK
MA, MSc, PhD, SFHEA
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Alex McConnachie
5 Professor of Clinical Trial Biostatistics, Robertson Centre for Biostatistics, University of Glasgow, Glasgow, UK
BSc, MSc, PhD
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Philip Wilson
6 Director of Centre for Rural Health, The Institute of Applied Health Sciences, University of Aberdeen, Aberdeen, UK
MA, MB BChir, DPhil, DCH, FRCGP, FRCPCH
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Article Figures & Data

Figures

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    Figure 1. Cumulative ACEs by missed appointment category.

    ACE = adverse childhood experience.

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    Figure 2. ACE domain by missed appointment category.

    ACE = adverse childhood experience. Supplementary Table 4 contains the cross-tabulation tables from which Figure 2 was derived.

Tables

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    Table 1. ACEs mapped to Read codes included in the study. All ACE questions were preceded by the statement ‘While you were growing up, before the age of 18 ...’
    ACE Questionnaire domains Mapped Read codes
    1. Sexual abuseHow often did anyone at least 5 years older than you (including adults) try to make you touch them sexually?How often did anyone at least 5 years older than you (including adults) force you to have any type of sexual intercourse (oral, anal, or vaginal)?How often did anyone at least 5 years older than you (including adults) ever touch you sexually? Once or more than once to any of the three questions0AK3. Child prostituteZV4G4 [V]Problem related/alleged sex abuse13ZW. At risk of sexual abuse14 × 1. History of sexual abuse13WC. Incest14 × 6. Victim of sexual abuseZ411. Sexual abuse counselling
    2. Physical abuseHow often did a parent or adult in your home ever hit, beat, kick or physically hurt you in any way? This does not include gentle smacking for punishment. Once or more than once63CB. Risk of non-accidental injury13ZT. At risk of physical abuse14 × 0. History of physical abuse13W40 Child/parent violence14 × 5. Victim of physical abuseZ412. Physical abuse counselling
    3. Verbal abuseHow often did a parent or adult in your home ever swear at you, insult you, or put you down?
    More than once
    13ZR. At risk of emotional/psychological abuse14 × 2. History of emotional abuse14 × 7. Victim of emotional abuseZV4H2 [V]Hostility towards and scapegoating of child
    4. Domestic violenceHow often did your parents or adults in your home ever slap, hit, kick, punch or beat each other up? Once or more than once13HP6 Violence between parents13VF. At risk violence in the home14 × 3. History of domestic violence14 × 8. Victim of domestic violence14XD. History of domestic abuseZ415. Domestic abuse counselling
    5. Parental separationWere your parents ever separated or divorced?
    Yes
    ZU273 Deserted by fatherZU274 Deserted by mother13W90 Single parent family, mother present13W91 Single parent family, father present
    6. Mental illnessDid you live with anyone who was depressed, mentally ill or suicidal?
    Yes
    No codes available
    7. Alcohol abuseDid you live with anyone who was a problem drinker or alcoholic?
    Yes
    63 C7. Maternal alcohol abusea
    8. Drug abuseDid you live with anyone who used illegal street drugs or who abused prescription medications?
    Yes
    12 × 1. Both parents misuse drugs12 × 2. Paternal drug misuse63C6. Maternal drug abuse
    9. IncarcerationDid you live with anyone who served time or was sentenced to serve time in a prison or young offender’s institution?
    Yes
    13I7. Imprisonment of family member13Hg. On conditional probation
    • ACE = adverse childhood experience.

    • aThere is no Read code for paternal alcohol abuse.

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    Table 2. ACE questionnaire domains mapped onto Read codes; childhood consequences of ACEs; wider childhood adversity; and adult consequences of ACEs; frequency counts of Read codes recorded and the NLP process
    ACE domain Frequency count of Read codes per patient (% sample) Bi/trigram retrieved then sense check edited Bi/trigrams retained after concordance check Conclusion
    Mapped onto ACE questionnaire
    Sexual abuse1306 (0.19)9/105 bigrams15/119 trigrams retained1 trigram retained‘sexual abuse by’Insufficient to proceed with generating dummy Read code
    Physical abuse279 (0.04)1/17 bigrams4/24 trigrams retained0 retainedInsufficient to proceed with generating dummy Read code
    Verbal abuse76 (0.01)Insufficient data–NLP not possible
    Domestic violence1017 (0.15)Insufficient data–NLP not possible
    Parental separation16 (0.002)Insufficient data–NLP not possible
    Mental illnessNo Read Code linked to this domain––NLP not possible
    Alcohol abuse74 (0.01)0/5 bigrams0/5 trigrams retained–NLP not possible
    Drug abuse83 (0.01)1/5 bigrams1/4 trigrams retained1 trigram retained‘on methadone programme’Insufficient to proceed with generating dummy Read code
    Incarceration25 (0.003)Insufficient data–NLP not possible
    Childhood consequences of ACEs 11 819 (1.72)224/998 bigrams412/998 trigrams retainedData accuracy poor as mixture of ACE exposures and consequences identifiedCodes insufficiently specific to the category of consequences of ACE to proceed
    Wider childhood adversity
    ‘Inadequate childhood experience’231 (0.03)0/4 bigrams0/7 trigrams retained–NLP not possible
    Problems at school621 (0.09)1/137 bigrams10/83 trigrams retained1 trigram retained‘by school psychologist’Insufficient to proceed with dummy Read code
    Neglect17 (0.002)Insufficient data–NLP not possible
    Adult consequences of ACEs 10 163 (1.48)86/1466 bigrams219/1468 trigrams retainedData accuracy poor despite event age method; accuracy of exposure in childhood versus adulthood, and perpetrator versus victim statusCodes insufficiently specific to the category of adult consequences of ACE to proceed
    • ACE = adverse childhood experience. NLP = natural language processing.

Supplementary Data

Supplementary materials

Supplementary material is not copyedited or typeset, and is published as supplied by the author(s). The author(s) retain(s) responsibility for its accuracy.

  • bjgpopen20X101011_Supp.pdf
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General practice recording of adverse childhood experiences: a retrospective cohort study of GP records
Andrea E Williamson, Ross McQueenie, David A Ellis, Alex McConnachie, Philip Wilson
BJGP Open 2020; 4 (1): bjgpopen20X101011. DOI: 10.3399/bjgpopen20X101011

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General practice recording of adverse childhood experiences: a retrospective cohort study of GP records
Andrea E Williamson, Ross McQueenie, David A Ellis, Alex McConnachie, Philip Wilson
BJGP Open 2020; 4 (1): bjgpopen20X101011. DOI: 10.3399/bjgpopen20X101011
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Keywords

  • general practice
  • adverse childhood experiences
  • appointments and schedules
  • healthcare utilization

More in this TOC Section

  • Challenges in reducing the 10-item CARE Measure to a two-item version: comparison of patients’ preferences with psychometric evaluation in a cross-sectional survey in Scotland
  • The role of reflexivity in exploring exclusion in GP training: a qualitative study of GP educators
  • Has the new Scottish GP contract improved GPs’ working lives in deprived areas? A secondary analysis of two cross-sectional national surveys of GPs’ views in 2018 and 2023
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