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Research

Euthanasia in the case of dementia: a survey among Flemish GPs

Jasper Cleemput and Birgitte Schoenmakers
BJGP Open 2019; 3 (4): bjgpopen19X101677. DOI: https://doi.org/10.3399/bjgpopen19X101677
Jasper Cleemput
1 Master Thesis Student, Academic Centre of General Practice, Department of Public Health and Primary Care, University of Leuven, Leuven, Belgium
MS
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Birgitte Schoenmakers
2 Professor, Academic Centre of General Practice, Department of Public Health and Primary Care, University of Leuven, Leuven, Belgium
MD, PhD
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  • ORCID record for Birgitte Schoenmakers
  • For correspondence: Birgitte.schoenmakers{at}kuleuven.be
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    Figure 1. Acceptability of performing euthanasia at different stages of dementia.

    Stage 1 = early dementia (moments of forgetfulness, fear of what will come, and sickness awareness); stage 2 = progressive dementia (disorientation, reduced awareness of time, increasingly worse recognition of loved ones); stage 3 = advanced dementia (complete withdrawal, without any sense of time, place, or person, endlessly engaged in certain movements and/or sounds); stage 4 = end-stage dementia (contactless, hardly any reaction, only physically present).

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    Table 1. Characteristics of participating GPs
    Characteristic n (%)
    Age , years
    26–4048 (42)
    41–5523 (20)
    ≥5642 (37)
    Sex
    Male60 (53)
    Female53 (47)
    Religious
    Yes46 (41)
    No67 (59)
    Ha s or had a family member with dementia
    Yes63 (56)
    No50 (44)
    Has performed euthanasia in the past
    Yes71 (63)
    No42 (37)
    Has previously performed euthanasia in patient with psychological suffering
    Yes24 (21)
    No89 (79)
    • View popup
    Table 2. Participant responses to statements regarding dementia and euthanasia (5-point Likert scale)
    Statement‘Rather not’ to ‘not agree’, n (%)‘Rather agree’ to ‘completely agree’, n (%)
    Euthanasia in patients without dementia is more acceptable than in patients with dementia17 (19)59 (69)
    Euthanasia in patients with dementia and concomitant diseases is more acceptable than in cases of 'healthy' dementia patients21 (24)51 (59)
    A medically classifiable condition (that is, more than a medical basis) is a requirement to perform euthanasia or assisted suicide29 (33)40 (43)
    In an older person, who suffers unbearably due to an accumulation of medical and non-medical problems, euthanasia or medically assisted suicide may be acceptable to me18 (20)63 (70)
    Euthanasia or medically assisted suicide is only acceptable to me if the patient suffers from a terminal illness54 (59)28 (30)
    At the firsta stage of dementia, euthanasia is acceptable40 (46)32 (44)
    At the progressiveb stage of dementia, euthanasia is acceptable22 (39)44 (51)
    At the progressedc stage of dementia, euthanasia is acceptable25 (29)56 (65)
    At the finald stage of dementia, euthanasia is acceptable21 (24)63 (72)
    Legislation on euthanasia in patients with dementia needs adjustment20 (34)49 (56)
    The current euthanasia law offers no room for assistance with a request for termination of life in patients with dementia8 (9)75 (85)
    With regards to legislation of euthanasia, dementia and coma patients are to be treated equally24 (28)58 (67)
    It is important that the patient gives their consent at the decisive moment26 (30)44 (51)
    If legislation allows euthanasia in case of dementia, relatives will put pressure on at the decisive moment14 (16)63 (72)
    • Category 'neutral’: omitted. aMoments of memory loss, fear of future, aware of disease. bDisorientation in time and space, problems recognising relatives. cRegression, no awareness of time and space, repetition of actions and noises. dNo interaction, no communication, no active reactions.

    • View popup
    Table 3. Free-text comments to question: 'If legislation allows euthanasia in later than the beginning stages of dementia, would you carry out euthanasia (if advance directive available)?'
    Answer label n = 86 (completed answers)
    Yes (if legal)36
    No, never18
    Only if complicated with physical comorbidities or other threatening conditions3
    No, since you cannot judge quality of life and meaning to others2
    No, since I want a clear ‘yes’ from the patient5
    Yes, if patient, family, relatives, and other carers are extensively involved and consulted in a shared decision-making11
    Yes, but considering that an advance directive does not necessarily reflect today's beliefs or wishes and that dementia was specified in the directive4
    Yes, if you know the patient, their life lifecycle, and their life view very well4
    No opinion3
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Euthanasia in the case of dementia: a survey among Flemish GPs
Jasper Cleemput, Birgitte Schoenmakers
BJGP Open 2019; 3 (4): bjgpopen19X101677. DOI: 10.3399/bjgpopen19X101677

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Euthanasia in the case of dementia: a survey among Flemish GPs
Jasper Cleemput, Birgitte Schoenmakers
BJGP Open 2019; 3 (4): bjgpopen19X101677. DOI: 10.3399/bjgpopen19X101677
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Keywords

  • general practice
  • euthanasia
  • Dementia
  • Belgium
  • Family practice
  • primary health care

More in this TOC Section

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  • Patients’ experiences of phosphatidylethanol in hypertension treatment in primary care: qualitative study
  • “I was lucky!” A mixed methods study exploring how practice placements affect F2 doctors’ attitudes to a GP career
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