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Research

Experience of primary care for people with HIV: a mixed-method analysis

Tanvi Rai, Jane Bruton, Meaghan Kall, Richard Ma, Erica Pufall, Sophie Day, Valerie Delpech and Helen Ward
BJGP Open 2019; 3 (4): bjgpopen19X101665. DOI: https://doi.org/10.3399/bjgpopen19X101665
Tanvi Rai
1 Research Associate, School of Public Health, Imperial College London, London, UK
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  • For correspondence: tanvi.rai{at}phc.ox.ac.uk
Jane Bruton
2 Clinical Research Manager, School of Public Health, Imperial College London, London, UK
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Meaghan Kall
3 Principal Scientist, HIV/STI Department, National Infection Service, Public Health England, London, UK
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Richard Ma
4 General Practitioner and NIHR Doctoral Research Fellow, School of Public Health, Imperial College London, London, UK
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Erica Pufall
5 Research Associate, School of Public Health, Imperial College London, London, UK
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Sophie Day
6 Visiting Professor of Anthropology, School of Public Health, Imperial College London, London, UK
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Valerie Delpech
7 Head of HIV Surveillance, Public Health England, London, UK
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Helen Ward
8 Professor of Public Health, School of Public Health, Imperial College London, London, UK
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Article Figures & Data

Tables

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    Table 1. Factors associated with GP disclosure and recent attendance among PLHIV registered with a GP
    DenominatorDisclosed to GPAttended GP inthe last3months
    WeightedUnweighted%OR (95% CI)P value%OR (95% CI)P value
    Overall 83 668442293.858.0
    Gender and sexuality a 0.010.001
    Gay and bisexual men38 300226492.8155.61
    Heterosexual men19 21784693.31.08 (0.75 to 1.56)56.31.03 (0.87 to 1.23)
    All women26 150120895.61.68 (1.18 to 2.38)62.01.31 (1.14 to 1.50)
    Age, years <0.0010.003
    15–3410 53549088.8151.51
    35–4936 413191193.51.81 (1.28 to 2.57)56.31.21 (0.95 to 1.53)
    ≥5036 720191595.52.63 (1.97 to 3.51)61.31.48 (1.15 to 1.91)
    Residence 0.0640.002
    London41 364214692.1158.61
    South of England12 18669394.41.44 (0.88 to 2.38)52.30.76 (0.61 to 0.94)
    Midlands, East of England, and Wales16 88388595.21.70 (1.05 to 2.75)57.90.95 (0.76 to 1.19)
    North of England13 23569895.92.02 (1.01 to 4.05)62.01.14 (0.97 to 1.34)
    Education level <0.001<0.001
    Primary or less556226798.6164.91
    Upper secondary32 403160394.50.23 (0.09 to 0.62)59.10.79 (0.61 to 1.03)
    Technical & vocational824441095.70.31 (0.11 to 0.83)64.81.00 (0.69 to 1.45)
    Bachelor’s degree24 268116792.80.18 (0.07 to 0.44)54.60.65 (0.47 to 0.90)
    Postgraduate degree13 19166291.40.14 (0.06 to 0.35)53.50.62 (0.47 to 0.82)
    Employment status <0.001<0.001
    Employed54 240273692.2151.01
    Unemployed910842195.61.84 (1.03 to 3.28)66.51.90 (1.52 to 2.38)
    Economically inactiveb 20 320105597.43.16 (1.84 to 5.43)71.92.46 (2.02 to 3.0)
    Non-HIV comorbidities <0.001<0.001
    None25 073127289.8142.71
    One19 57399792.01.29 (0.80 to 2.07)51.61.46 (1.20 to 1.76)
    Two13 54772495.22.27 (1.45 to 3.56)61.21.98 (1.64 to 2.40)
    Three979553097.03.69 (2.01 to 6.78)70.93.19 (2.59 to 3.92)
    Four or more15 67986698.36.39 (2.93 to 13.95)79.14.92 (3.92 to 6.18)
    Self-rated health 0.012<0.001
    Good/very good60 737316192.9152.41
    Fair18 03794395.71.68 (1.03 to 2.73)68.61.99 (1.65 to 2.39)
    Bad/very bad489425598.86.22 (1.27 to 30.53)84.95.16 (3.47 to 7.69)
    Money for basic needs 0.004<0.001
    Yes, always39 142201992.6150.61
    Not always44 526207594.91.48 (1.114 to 1.93)64.21.73 (1.51 to 1.98)
    ART status 0.0040.072
    On ART81 778429494.0158.31
    Not on ART18909986.70.42 (0.23 to 0.75)47.90.66 (0.41 to 1.04)
    Viral suppression c 0.9870.053
    Yes81 333353993.9157.41
    No23359893.90.99 (0.39 to 2.56)67.71.53 (0.99 to 2.35)
    Year of HIV diagnosis <0.001<0.001
    Pre-199610 29854597.6166.11
    1996–200531 871159394.80.45 (0.26 to 0.77)59.30.75 (0.60 to 0.94)
    2006–201741 499214992.10.29 (0.16 to 0.53)54.80.62 (0.49 to 0.78)
    Worried about discrimination in health care due to HIV 0.8330.005
    Never54 169273394.1156.81
    >1 year ago16 21084094.31.01 (0.69 to 1.49)56.20.97 (0.83 to 1.13)
    In the last year13 28967093.50.89 (0.59 to 1.36)64.31.36 (1.13 to 1.63)
    Avoided health care due to HIV <0.0010.159
    Never68 465344294.8157.71
    >1 year ago703534590.60.52 (0.34 to 0.79)54.10.85 (0.68 to 1.06)
    In the last year816840089.10.44 (0.28 to 0.70)60.31.11 (0.92 to 1.33)
    • ART = antiretroviral therapy. CI = confidence intervals. OR = odds ratio.

    • a Transmen and transwomen are included in the gender groups with which they self-identified. Due to small numbers, those who identify as non-binary/in another way (representing 0.5% of Positive Voices responders) are excluded from the binary gender breakdown. Gay and bisexual men are identified as MSM (men who have sex with men) in the main text.

    • b Economically inactive includes individuals who are not in employment or unemployed, including those who are retired, looking after family, long-term sick, carers, students, and those whose immigration status does not permit them to do paid work.

    • c Viral suppression defined as VL <200 copies/ml in last reported viral load result in 2017.

    • View popup
    Table 2. Factors associated with patient-reported experience measuresa among PLHIV registered with their GP
    GP knowsenough about HIVGP is as involved as I want them to be in HIV careGood communicationbetween GP and HIV specialistComfortableasking GP questions about HIV
    %agreementOR(95%CI) P value%agreementOR(95% CI) P value%agreementOR(95% CI) P value%agreementOR(95% CI)Pvalue
    Overall 64.765.164.158.9
    Gender and sexuality b <0.001<0.001<0.0010.018
    Gay and bisexual men57.6169.2157.3157.61
    Heterosexual men73.11.98 (1.65 to 2.37)67.40.94 (0.78 to 1.13)69.81.72 (1.41 to 2.10)65.41.39 (1.11 to 1.74)
    All women69.01.63 (1.36 to1.96)58.50.63 (0.52 to 0.74)70.01.73 (1.41 to 2.11)56.20.93 (0.82 to 1.08)
    Age , years <0.001<0.001<0.001<0.001
    15–3456.3157.6152.3148.31
    35–4962.51.27 (1.02 to 1.60)61.31.15 (0.93 to 1.43)61.51.44 (1.12 to 1.86)55.21.31 (1.01 to 1.69)
    ≥5069.31.74 (1.36 to 2.22)72.01.86 (1.43 to 2.43)70.02.10 (1.62 to 2.74)65.92.05 (1.57 to 2.67)
    Residence 0.2790.039<0.0010.058
    London65.0162.3159.1157.31
    South of England61.90.88 (0.74 to 1.05)68.31.29 (1.03 to 1.61)63.01.18 (0.93 to 1.51)59.71.03 (0.79 to 1.33)
    Midlands, East of England, and Wales64.40.99 (0.81 to 1.20)64.91.11 (0.87 to 1.41)69.01.55 (1.26 to 1.90)58.91.01 (0.84 to 1.22)
    North of England66.91.10 (0.90 to 1.20)69.91.38 (1.05 to 1.81)71.41.72 (1.44 to 1.51)63.61.31 (1.06 to 1.61)
    Education level 0.0330.158<0.001<0.001
    Primary or less71.2169.3171.1166.71
    Upper secondary66.30.80 (0.60 to 1.07)66.70.87 (0.66 to 1.14)65.90.81 (0.55 to 1.20)62.10.84 (0.62 to 1.14)
    Technical & vocational66.60.80 (0.58 to 1.10)67.60.89 (0.60 to 1.32)68.10.89 (0.56 to 1.40)64.00.90 (0.65 to 1.24)
    Bachelor’s degree63.00.69 (0.51 to 0.93)64.80.80 (0.61 to 1.04)63.30.73 (0.50 to 1.06)55.50.64 (0.47 to 0.86)
    Postgraduate degree58.00.55 (0.37 to 0.82)62.70.72 (0.51 to 1.02)54.70.51 (0.34 to 0.76)51.50.54 (0.37 to 0.78)
    Employment status 0.011<0.001<0.001<0.001
    Employed62.2163.9160.7156.81
    Unemployed68.21.32 (0.97 to 1.78)60.50.86 (0.66 to 1.12)64.41.15 (0.91 to 1.45)60.41.16 (0.95 to 1.41)
    Economically inactivec 67.51.26 (1.09 to 1.47)71.21.37 (1.13 to 1.65)70.51.53 (1.28 to 1.82)63.41.30 (1.14 to 1.48)
    Non-HIV comorbidities <0.0010.3280.3580.281
    None67.4162.4162.8160.21
    One61.60.84 (0.72 to 0.99)65.01.10 (0.87 to 1.40)62.51.07 (0.85 to 1.33)58.50.98 (0.84 to 1.14)
    Two66.10.93 (0.76 to 1.15)67.31.23 (0.93 to 1.62)64.21.10 (0.89 to 1.35)61.00.98 (0.79 to 1.23)
    Three67.91.09 (0.82 to 1.45)69.41.34 (1.00 to 1.80)67.01.23 (0.93 to 1.63)58.40.99 (0.79 to 1.24)
    Four or more60.00.77 (0.63 to 0.94)66.01.17 (0.87 to 1.57)65.81.20 (098 to 1.46)56.40.87 (0.73 to 1.03)
    Self-rated health <0.0010.0070.3510.023
    Good/very good66.9166.2164.7160.71
    Fair60.30.75 (0.63 to 0.90)64.20.91 (0.73 to 1.14)63.50.94 (0.80 to 1.11)55.50.81 (0.68 to 0.96)
    Bad/very bad55.20.61 (0.45 to 0.83)57.80.70 (0.56 to 0.87)60.20.83 (0.64 to 1.07)54.00.76 (0.59 to 0.97)
    Money for basic needs 0.004<0.0010.0180.271
    Yes, always62.3170.1161.3160.11
    Not always66.51.20 (1.06 to 1.36)61.30.66 (0.55 to 0.80)66.31.23 (1.04 to 1.46)58.00.92 (0.80 to 1.07)
    ART status 0.7370.6110.9360.259
    On ART64.7165.1164.0158.81
    Not on ART63.20.92 (0.55 to 1.52)68.51.16 (0.64 to 2.11)63.90.98 (0.58 to 1.65)66.11.35 (0.80 to 2.29)
    Viral suppression d 0.5170.0390.2090.566
    Yes63.7165.1163.7158.51
    No66.91.17 (0.72 to 1.92)51.70.58 (0.34 to 0.97)55.90.72 (0.43 to 1.20)54.70.86 (0.52 to 1.44)
    Year of HIV diagnosis 0.0130.0380.0530.191
    Pre-199659.2169.0164.1158.31
    1996–200565.61.29 (1.07 to 1.55)62.70.74 (0.59 to 0.94)66.11.09 (0.94 to 1.26)57.10.95 (0.75 to 1.20)
    2006–201764.61.26 (1.07 to 1.49)65.70.86 (0.69 to 1.08)61.40.90 (0.77 to 1.05)59.91.08 (0.87 to 1.34)
    Worried about discrimination in health care due to HIV <0.001<0.001<0.001<0.001
    Never70.5169.4167.6165.81
    >1 year ago55.70.52 (0.42 to 0.64)61.10.68 (0.57 to 0.81)59.70.70 (0.60 to 0.83)50.40.52 (0.44 to 0.62)
    In the last year49.80.42 (0.34 to 0.51)54.30.52 (0.40 to 0.69)53.90.56 (0.45 to 0.70)41.40.37 (0.30 to 0.45)
    Avoided seeking health care when needed due to HIV <0.001<0.001<0.001<0.001
    Never67.6168.3165.7162.31
    >1 year ago53.00.55 (0.42 to 0.73)59.30.67 (0.51 to 0.90)56.60.67 (0.51 to 0.89)46.70.53 (0.42 to 0.66)
    In the last year43.60.37 (0.31 to 0.45)46.50.40 (0.33 to 0.50)52.70.58 (0.44 to 0.77)36.30.35 (0.28 to 0.43)
    • ART = antiretroviral therapy. CI = confidence intervals. OR = odds ratio. PLHIV = people living with HIV.

    • aThe four 5-item Likert scale patient-reported experience measures (PREMS) on experience with their GP as relates to their HIV: 1)'My GP knows enough about my HIV condition and treatment'; 2) 'My GP is as involved as I want them to be with my HIV care'; 3) 'My HIV specialist and my GP communicate well regarding my health'; 4)'I am comfortable asking my GP questions about HIV'. Responses of ‘Strongly Agree‘ and ‘Agree‘ were combined, and ‘Disagree‘, ‘Strongly Disagree‘, and ‘Don’t know or Not applicable‘ were combined.

    • bTransmen and transwomen are included in the gender groups with which they self-identified. Due to small numbers, those who identify as non-binary/in another way (representing 0.5% of Positive Voices respondents) are excluded from the binary gender breakdown. Gay and bisexual men are identified as MSM (men who have sex with men) in the main text.

    • cEconomically inactive includes individuals who are not in employment or unemployed, including those who are retired, looking after family, long-term sick, carers, students, and those whose immigration status does not permit them to do paid work.

    • dViral suppression defined as VL <200 copies/ml in last reported viral load result in 2017.

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Experience of primary care for people with HIV: a mixed-method analysis
Tanvi Rai, Jane Bruton, Meaghan Kall, Richard Ma, Erica Pufall, Sophie Day, Valerie Delpech, Helen Ward
BJGP Open 2019; 3 (4): bjgpopen19X101665. DOI: 10.3399/bjgpopen19X101665

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Experience of primary care for people with HIV: a mixed-method analysis
Tanvi Rai, Jane Bruton, Meaghan Kall, Richard Ma, Erica Pufall, Sophie Day, Valerie Delpech, Helen Ward
BJGP Open 2019; 3 (4): bjgpopen19X101665. DOI: 10.3399/bjgpopen19X101665
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Keywords

  • HIV
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