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Managing expectations
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‘I believe it can be frustrating when expectations don’t align. For instance, a patient might read about endometriosis and anticipate being seen by a gynaecologist ...’
| Having that conversation early in the process is essential. | The GPs emphasised the critical importance of managing patient expectations for those exhibiting endometriosis symptoms. Four of the five interviewed GPs highlighted the need to manage patient expectations early in the process. |
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Gatekeeper function
| ‘This creates a situation where gynaecologists may prefer that we [the GPs] refrain from referring patients with endometriosis unless there are considerations for surgery or fertility, as if the patient must be planning to have a child ...’You often feel helpless in practice because when you refer a patient to the gynaecologist and they are told that everything looks normal and that “there’s nothing wrong with you”, it can be disheartening. After all, the specialists are the experts.’
| Experiencing a sense of helplessness while bearing the responsibility alone. It can be challenging to navigate a system where referrals are limited to one place. | By validating and acknowledging the patient’s concerns, GPs find that it encourages greater receptiveness to further treatments. Many patients have endured a long journey without effective relief for their symptoms. The GPs noted that those with endometriosis and chronic pain often struggle to be taken seriously, which can lead them to develop additional psychosocial disorders if their long-standing pain is not addressed. |